Below are some links where you can find out more about this disease and how you can help:
A nationwide campaign launched by the National MPS Society that urges parents, physicians and the American public to help identify children with MPS in order to drive earlier diagnosis and to ensure optimal disease management.
The National MPS Society’s goal is to find a cure for MPS and ML disorders. The National MPS Society will achieve this goal by supporting research, providing support to individuals and their families affected by an MPS or ML disease, promoting public and professional awareness, and significantly increasing participation by regions.
This forum offers a great source of support for affected families by providing a place to come together to share ideas, concerns, questions, and encouragement.