what is sanfilippo syndrome | fundraising | research | donations | photo gallery | publicity | home  


Below are some links where you can find out more about
this disease and how you can help:

Join the Search

A nationwide campaign launched by the National MPS Society that urges parents, physicians and the American public to help identify children with MPS in order to drive earlier diagnosis and to ensure optimal disease management.

National MPS Society

The National MPS Society's goal is to find a cure for MPS and ML disorders. The National MPS Society will achieve this goal by supporting research, providing support to individuals and their families affected by an MPS or ML disease, promoting public and professional awareness, and significantly increasing participation by regions.

MPS Forum

This forum offers a great source of support for affected families by providing a place to come together to share ideas, concerns, questions, and encouragement.

 

 

Click here to visit Join the Search


Click here to visit the National MPS Society
Click here for research articles from various colleges across the country regarding research on this disease.  
Click here for a letter from a doctor in Paris doing research on this disease